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    Vancouver time: 7:16 pm
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    About CIHRRC

    History

    This Collaborative was originally established in 2009 as a partnership among researchers, clinicians, community members and organizations in Canada and the United Kingdom (UK), originally referred to as the Canada-UK HIV and Rehabilitation Research collaborative (CUHRRC).  Since inception, the Collaborative has expanded to include members from the United States, Ireland, and other countries whereby individuals living with HIV experience similar types of issues related to disability and rehabilitation. 

    Guiding Principles:

    CIHRRC is based on the belief that forming partnerships and exchanging knowledge among countries with individuals experiencing similar types of disability related to HIV is an important step in bridging widespread clinical knowledge with a strong research foundation on HIV and rehabilitation.

    CIHRRC aims to build on the enthusiasm of individual members to facilitate the advancement of research ideas and activities related to HIV and rehabilitation research.

    CIHRRC also supports the GIPA principle (Greater Involvement of People Living with HIV/AIDS) and MIPA principle (Meaningful Involvement of People Living with HIV/AIDS).

    Strategic Directions - Research Priorities:

    With direction from the CIHRRC Steering Committee, the CIHRRC membership will pursue a variety of research initiatives that address research priorities in HIV and rehabilitation originally identified by Realize (formerly the Canadian Working Group on HIV and Rehabilitation (CWGHR))2 and updated by members of Realize / CWGHR and CIHRRC at the International Forum on HIV and Rehabilitation Research in June 2013.

    The current research priorities in HIV and rehabilitation include:

    1. Episodic health and disability
    2. Aging with HIV across the life course
    3. Concurrent health conditions
    4. Access to rehabilitation and models of rehabilitation service delivery
    5. Effectiveness of rehabilitation interventions
    6. Enhancing outcome measurement in HIV and rehabilitation research

    These priorities will be reviewed and updated regularly as new knowledge and priorities related to HIV and rehabilitation evolve internationally.

    Strategic Directions - Activities:

    CIHRRC will focus on the following activities as they relate to HIV and rehabilitation research:

    • facilitating knowledge transfer and exchange on HIV and rehabilitation research, clinical practice and service delivery among people living with HIV, researchers, clinicians, educators representatives of community organizations and policy stakeholders in Canada and internationally;
    • establishing new and strengthening existing research and clinical partnerships in the field of HIV and rehabilitation;
    • fostering mentorship and training in HIV and rehabilitation research;
    • identifying new and emerging priorities in HIV and rehabilitation research and practice and;
    • establishing a plan for sustainability and growth as an international research collaborative to address priorities in HIV and rehabilitation research. 

    Membership:

    The CIHRRC will include representatives from the CWGHR, people living with HIV, clinicians and researchers in Canada and internationally. Anyone who is interested can join CIHRRC. The structure of CIHRRC will include Chapters comprised of members from respective countries represented in CIHRRC (e.g. Canada Chapter; UK Chapter, etc). Membership will include receipt of CIHRRC communication electronically and the opportunity to engage in CIHRRC's activities as outlined below. 

    Roles and Responsibilities for CIHRRC Members:

    Primary roles and responsibilities of CIHRRC Members will be to:

    • Participate in ongoing discussions, research activities and funding opportunities to facilitate increased coordination and enhanced opportunities for research on HIV, disability and rehabilitation.
    • Participate in meetings to plan and implement research activities through CIHRRC in Canada and internationally.
    • Participate in the review of knowledge translation materials and dissemination of research findings to community-based audiences.
    • Facilitate the translation of research knowledge, progress, and findings on HIV, disability and rehabilitation. This may include but are not limited to co-authoring peer reviewed publications, writing newsletter articles, developing factsheets and/or summaries of research evidence, and presenting at conferences.

    Communication:

    The CIHRRC Membership will aim to meet via teleconference or webinar approximately 2 times per year in addition to specific meetings that relate to different research initiatives ongoing with CIHRRC members (as funding permits). Individual communication among CIHRRC members will occur as needed.

    CIHRRC members may work collectively with each other and/or as a CIHRRC Chapter, and/or the CIHRRC Steering Committee to apply for funding to facilitate a face-to-face meeting approximately every 2 years (as funding permits) in order to review, revise and pursue emerging and existing research priorities in HIV, disability and rehabilitation.

    Access to Data:

    Access to raw data related to this research collaborative will be limited to members directly involved as study investigators in the research activity and will adhere to  research ethics board requirements.

    Authorship:

    Authorship of publications related to CIHRRC activities will be negotiated as it relates to specific initiatives, research projects and specific investigators involved in the work in accordance with the International Committee of Medical Journal Editors (ICMJE) Authorship Guidelines.